Joy Eseoghene Odiete, also known as Jodie, a well-known musician in Nigeria, went through a difficult time when her son Chinua was born with lissencephaly and cerebral palsy. Her marriage fell apart and she faced abandonment from friends. Despite the challenges, she decided to share her son’s journey online to raise awareness and promote acceptance.
This led her to establish the Chinua Children Care Foundation, aiming to support families with children with special needs and advocate for better education and welfare systems. Oluwakemi Oluwakoyode, another mother, also faced stigma and challenges when her daughter Oluwaponmile was diagnosed with cerebral palsy. She had to leave her job to care for her daughter and faced discrimination in schools and public spaces.
Dr. Iyare Osarhiemen highlighted the issue of healthcare workers withholding diagnoses from parents due to fear, causing unnecessary anxiety. The lack of support and resources for children with disabilities in Nigeria is a significant concern. Dr. Murtala Yusuf emphasized the need for more inclusive education and support systems for children with special needs.
Despite laws mandating inclusive education, many children with disabilities still face stigma and discrimination. Emmanuella Akinola pointed out the government’s failure to provide adequate support for families with special needs. The School for Special Needs Children in Osun state is struggling due to neglect and lack of resources.
Omotoke Olugbode, an inclusion advocate, highlighted the societal issue of excluding children with special needs. However, organizations like the Chinua foundation are working to provide support, education, and empowerment to families. Through skill acquisition programs and community activities, they aim to change perspectives and provide practical assistance.
Faith Gabriel, a grandmother caring for her grandson with cerebral palsy, shared her struggles and financial challenges. Thanks to support from individuals like Odiete, she found hope and a sense of community. Odiete’s efforts to use her music to advocate for children with special needs and inspire other mothers have made a positive impact.
Overall, the stories of these mothers highlight the importance of acceptance, support, and advocacy for children with special needs in Nigeria. By sharing their experiences and challenges, they are working towards creating a more inclusive and compassionate society for all individuals, regardless of abilities.